Registries
New perspectives on Autoinflammatory Diseases
Improving the knowledge is one of our goals
The AIDA web platform hosts seven international Registries aimed at collecting demographic, genetic, clinical and therapeutic data on Autoinflammatory Diseases.
The following AIDA Registries are enrolling:
Behçet’s syndrome
This Registry will make possible an overall re-evaluation of Behçet's disease based on the latest ethiopathogenic and therapeutic acquisitions.
Castleman disease
Idiopathic multicentric Castleman disease (iMCD) is a rare and life-threatening lymphoproliferative disorder characterized by systemic inflammation, lymph node…
PFAPA syndrome
This Registry will allow a more accurate definition of PFAPA syndrome during adulthood along with a factual comparison with the pediatric form of the disease.
Schnitzler’s syndrome
This Registry is intended to provide detailed information about presentation, outcome and treatment of Schnitzler’s syndrome based on a large number of…
Scleritis
The Registry on scleritis will allow an higher awareness on this clinical entity, in the view of the current knowledge of this potentially disabling condition.
Spondyloarthritis
The international AIDA registry for spondyloarthritis has been established with the aim of gathering data on both axial and peripheral joint manifestations…
Still Disease
A registry dedicated to Still disease, collecting retrospective and prospective data from children and adults, with the aim to assess the course of the disease…
Undifferentiated Systemic AutoInflammatory Diseases
The AIDA Registry on Undifferentiated AutoInflammatory Diseases (USAIDs) takes on the central task of better understanding an heterogeneous group of clinical…
Uveitis
The Registry on uveitis will allow a new evaluation of the clinical history of this clinical condition in the view of the current diagnostic and therapeutic…
VEXAS
The Registry collects clinical data of patients affected by VEXAS (vacuoles, E1 enzyme, X-linked, autoinflammatory, somatic) syndrome, caused by somatic…
Monogenic Autoinflammatory Diseases
This permanent on-line national network is thought to overcome the fragmentation of current knowledge about monogenic autoinflammatory diseases.