Four AIDA registries now listed in the European ERDRI directory

Four AIDA registries (Behçet’s disease, Monogenic autoinflammatory diseases, PFAPA syndrome and Still disease) are now registered on the European Rare Disease Registry Infrastructure (ERDRI) directory ERDRI.dor. The European Platform on Rare Disease Registration makes rare disease registries' data searchable and findable, thus increasing visibility for each registry, maximising the value of each registry's information and enabling extended use and re-use of registries' data. This step will enable the AIDA registries to efficiently communicate with the other registries adopting the same scheme, also in the context of ERN RITA and the other ERNs.