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ERDRI.dor registration is complete!
All the AIDA registries are now listed in the European ERDRI directory
The AIDA registries for Behçet’s syndrome, monogenic autoinflammatory diseases, PFAPA syndrome, Still disease, Schnitzler's syndrome, undifferentiated systemic autoinflammatory diseases, VEXAS syndrome, uveitis and scleritis are now registered on the European Rare Disease Registry Infrastructure directory (ERDRI.dor). The ERDRI.dor provides an overview of European rare disease registries with their main characteristics and description, making them findable through a structured search function and thus maximising their visibility.
Now, we are moving to the next step, which is uploading the AIDA registry metadata on the ERDRI.mdr, the Central Metadata Repository aimed at harmonising data from different registries to use them for overarching collaborative studies.
