Research
Development and Implementation of the AIDA International Registry for Patients with Undifferentiated Systemic AutoInflammatory Diseases
An article about the design, development and deployment of the AIDA International Registry dedicated to paediatric and adult patient affected by Undifferentiated Systemic AutoInflammatory Diseases (USAIDs) has recently published.
Link to article. DOI: 10.3389/fmed.2022.908501
The manuscript is focalized on registry aims and methodology. The Registry allows both retrospective and prospective real-world data collection and will facilitate connection between a worldwide group of researchers and physicians. The Registry constitutes an international multicenter observational groundwork aimed at increasing the patient cohort of USAIDs in order to improve our knowledge of this peculiar cluster of autoinflammatory diseases.