Research
Development and Implementation of the AIDA International Registry for Patients with Still's Disease
Recently, a paper on design, construction, and modalities of dissemination of the AIDA International Registry for patients with systemic juvenile idiopathic arthritis (sJIA) and adult-onset Still’s disease (AOSD) has published.
Link to article. DOI: 10.3389/fmed.2022.878797
The article explains aim and methodology of the Registry, which allows collection of real-world demographics, clinical, laboratory, instrumental and socio-economic data. This international Registry will allow robust clinical research through collection of standardized data, international consultation, dissemination of knowledge, and implementation of observational studies based on wide cohorts of patients followed-up for very long periods. Solid evidence drawn from “real-life” data represents the ultimate goal of this Registry, which has been implemented to significantly improve the overall management of patients with Still’s disease.