Research
Development and implementation of the AIDA international registry for patients with Schnitzler's syndrome
A paper illustrates the design, development, and implementation of the AIDA International Registry for patients with Schnitzler syndrome has recently published.
Link to article DOI: 10.3389/fmed.2022.931189
The Registry is thought to collect both retrospective and prospective standardized information for clinical research. It has been realized to change over time according to future scientific acquisitions and potentially communicate with other existing or future similar registries. This Registry facilitates standardized data collection, enabling international collaborative projects through data sharing and dissemination of knowledge; in turn, it will shed light into many blind spots characterizing this complex autoinflammatory disorder.