Research
Development and implementation of the AIDA International Registry for patients with PFAPA Syndrome
A paper on the methodology, design, and development of the AIDA International Registry for paediatric and adult patients with the Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis (PFAPA) syndrome has newly published.
Link to article. DOI:10.3389/fped.2022.930305
This registry is designed to collect standardized information for clinical research, with the goal of obtaining robust real-life evidence. The international scope and the flexibility of the registry will facilitate the implementation of cutting-edge study projects through the constant updating of variables and the possible merging and transfer of data between current and future PFAPA registries. The development of the registry will connect a worldwide group of physicians and researchers to improve knowledge about this clinical entity.