Research
Development and implementation of the AIDA international registry for patients with Behçet's disease
Recently, an article focused on the design, development, and deployment of the AIDA International Registry dedicated to paediatric and adult patients affected by Behçet’s disease (BD) has published.
Link to article DOI: 10.1007/s11739-022-03038-1
The Registry is structured for the retrospective and prospective collection of real-life data about demographics, clinical, therapeutic, laboratory, instrumental and socioeconomic information from BD patients. The development of this International Registry will facilitate the collection of standardised data leading to real-world evidence, enabling international multicentre collaborative research through data sharing, international consultation, dissemination of knowledge, inclusion of patients and families, and ultimately optimisation of scientific efforts and implementation of standardised care.