An Important Milestone: The AIDA Still’s Disease Registry Surpasses 700 Patients

The AIDA Network is proud to share a new and significant achievement in the field of autoinflammatory diseases: the AIDA Still’s Disease Registry has now surpassed 700 enrolled patients. This major milestone highlights the strength of global collaboration in generating high-quality real-world data, essential to improving the understanding and management of this complex condition.

Since its launch just over two years ago, the registry has proven to be a valuable resource for international clinical research. Several scientific publications have already emerged from the data collected, offering meaningful contributions to the knowledge of Still’s disease pathogenesis, clinical features, and therapeutic strategies. Many more research projects are currently ongoing, further demonstrating the dynamism and growing impact of this initiative.

The continuous expansion of the registry is made possible by the active participation of 317 centers across 51 countries, all part of the AIDA Network and contributing to the activities of the Still’s disease registry. With each new center involved, the diversity and representativeness of the data grow, offering an increasingly global and inclusive picture of the disease.

This robust real-life dataset allows for the exploration of unanswered clinical questions and the development of more targeted therapeutic approaches. The integration of clinical experiences from diverse geographical contexts makes it possible to go beyond the limitations of single-center studies, offering a broader and more practical understanding of Still’s disease.

With more than 700 patients enrolled, the AIDA Still’s Disease Registry is now the largest active international registry dedicated to this condition. This achievement lays the foundation for future breakthroughs and concrete improvements in patient care.

Our heartfelt thanks go to all researchers and centers who have contributed — and continue to contribute — to the success of this ambitious project. Together, we are building a more informed and patient-centered future for Still’s disease.

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