MeetingOnline
Meeting AIDA Network - 5th Edition 2020
The participation will be useful and necessary to facilitate the work of medical researchers of the centers involved in the AIDA project and will ensure the optimal quality of data that will be prospectively collected and inserted over time.
Date: 14-15 October 2020
Duration of The Event: 5 hours
ID code ECM Event: 5535-301098
CME Credits: 7,5 CME
Recipients of the Initiative: Medical Doctor: Ophthalmologist, Pediatrician, Rheumatologist, Immunologist, Gastroenterologist, Internist
Scientific Coordinator: Luca Cantarini, Associate Professor of Rheumatology, University of Siena
Number of Partecipants: 100
Training objectives. General topics: digital health care, advanced computer science and scientific English language. Healthcare regulations: the ethical and civil principles of the NHS and regulations on subjects covered by the individual health professions, with the acquisition of system news.
Scientific Rational. Despite the recent improvement of knowledge on monogenic and polygenic Autoinflammatory Diseases, still today the data on the expression of these rare diseases are insufficient and further studies are indispensable especially in adulthood.
For this reason was conceived the AIDA Project, whose acronym derives from AutoInflammatory Diseases Alliance, aimed at overcoming the fragmentation of knowledge related to these diseases through the sharing of data and clinical experiences from individual centers. The AIDA project has provided for the creation of a web platform (www.aidanetworg.org) that hosts numerous registers dedicated to the prospective collection of clinical, laboratory and therapeutic data in these areas.
The meeting scheduled for October 14 and 15, 2020 aims to illustrate to all doctors/researchers involved in the study the theoretical and practical details of the Project.
During the meeting will be illustrated the different platforms of the registries hosted by the web platform and will deepen the modalities of data collection and data entry in the registries themselves, thus giving the opportunity to all participants to collaborate fruitfully in the project. Ample space will be given to practical evidence of data entry into the registry platforms by experienced operators. These instructors will be available to answer practical and theoretical questions from participants in the meeting in order to overcome any critical issues that may arise during the simulations. The participation in the event will therefore be useful and necessary to facilitate the work of medical researchers of the centers involved in the AIDA project and will ensure the optimal quality of data that will be prospectively collected and inserted over time.
14th October - Moderators: Luca Cantarini, Bruno Frediani
- 15:00 – 15.20: Welcome greetings and general introduction to AIDA registers, Luca Cantarini, Bruno Frediani
- 15.20 – 15.50: AIDA register numbers: update, Maria Tarsia
- 15.50 – 16.10: Innovative aspects and technology of AIDA registers, Alberto Balistreri
- 16.10 – 17.00: Training: data entry in AIDA registers, Stefano Gentileschi
- 17.10 – 17.30: Discussion
15th October - Moderators: Luca Cantarini, Alberto Balistreri
- 09.30 – 9.50: Training on clinimetric scores entered in the AIDA registers, Jurgen Sota
- 9.50 – 10.10: Application of the diagnostic and classification criteria included in the AIDA registers, Antonio Vitale
- 10.10 – 10.40: AIDA registers ocular autoimmunity platforms, Claudia Fabiani
- 10.40 – 11.30: Training: data entry in AIDA registers, Carla Gaggiano