Magazine
Aida magazine
Our magazine collects articles of various kinds: scientific news and updates, reports and insights relevant to training in the AIDA academy and much more.

Long-term remission and monocyclic course in Still’s disease patients starting canakinumab early: data from the international AIDA network registry
New evidence from the AIDA Network Still’s Disease Registry supports the benefits of early canakinumab treatment, showing higher rates of long-term remission,…

New Study from the AIDA Network Registry Identifies Risk Factors for Intestinal Involvement in Behçet’s Disease
International data from the AIDA Network Behçet’s Disease Registry highlight the prognostic role of major aphthosis in patients with mucocutaneous-onset…

New Publication from the AIDA Network Scleritis Registry: Predictors of Ocular Complications in Non-infectious Scleritis
We are pleased to share a new scientific publication arising from data collected within the International AIDA Network Scleritis Registry, recently published…

Machine Learning Helps Predict Macrophage Activation Syndrome in Still’s Disease
New collaborative study from the AIDA Network Still’s Disease Registry and the GIRRCS AOSD Study Group identifies key clinical predictors of MAS through…

New Publication from the AIDA Network Registry on VEXAS Syndrome: The Role of Recurrent Fever
We are pleased to share a new scientific publication arising from data collected within the International AIDA Network VEXAS syndrome Registry.

New study launched within the AIDA Network: deadline extended to March 16, 2026
A new collaborative study has been initiated within the AIDA Network to investigate the use of combination therapy with two biologic agents or with a biologic…

New Publication from the AIDA Network Registry on Behçet's disease: Exploring Alternatives Beyond Anti-TNF Therapy
We are pleased to share a new scientific publication arising from data collected within the International AIDA Network Behçet’s disease Registry

New Study from the AIDA Network Registries Explores the Link Between VEXAS Syndrome and Cancer
A new study based on data from the international AIDA Network registries has recently been published, providing important insights into the association between…

New Study from the AIDA Network Registries Helps Distinguish VEXAS from Schnitzler’s Syndrome
A new study based on data from the AIDA Network registries on VEXAS syndrome and Schnitzler’s syndrome has recently been published, providing important…

A New Important Milestone: The AIDA Still’s Disease Registry Surpasses 800 Patients
International collaboration continues to drive real-life clinical research toward deeper understanding and increasingly personalized care.

AIDA Reaches 6,000 Enrolled Patients: A Shared Achievement Driven by Collaboration and Commitment
The AIDA Registries continue to expand at an outstanding pace. We have now reached an extraordinary milestone of 6,000 patients enrolled across the 11 active…

New Insights from the AIDA Network Uveitis Registry: How Life Stages Influence Non-Infectious Uveitis
A new study based on data from the AIDA Network Uveitis Registry has just been published, offering important insights into how non-infectious uveitis (NIU)…

New Publication from the AIDA Network Behçet’s Disease Registry
We are pleased to announce the publication of a new scientific article based on data from the AIDA Network Behçet’s Disease Registry, titled “Risk of major…

New Study from the AIDA Network Behçet’s Disease Registry: Understanding the Risk of Eye Involvement
A new publication based on data from the International AIDA Network Behçet’s Disease Registry sheds light on an important question for both patients and…

New publication from the AIDA Network: Long-term outcomes of IL-1 inhibitors in Schnitzler syndrome
We are pleased to announce the publication of a new study from the AIDA Network Schnitzler Registry, providing valuable real-world evidence on the long-term…

Update on Authorship Criteria for the Behcet and Still Registries
Over the past few years, the AIDA Network has experienced an impressive expansion in the number of centers actively participating in patient recruitment across…

New Study on the Dermatological Spectrum of Still’s Disease Published
A new international study has just been released, focusing on the wide range of skin manifestations in Still’s disease. The article, titled “Unfolding…

New Publication on Pediatric Uveitis: Risk of Ocular Complications
We are pleased to announce a new international publication based on data from the AIDA Network Uveitis Registry. The study, “Incidence and predictors of ocular…

New Publication: AIDA Network Data on Imaging Findings in Axial Spondyloarthritis with Recurrent Fever
We are pleased to announce the publication of a new scientific article based on data from the AIDA Network Spondyloarthritis Registry. The study explores the…

New AIDA Network Scientific Publication
We are pleased to announce the publication of the article “Development and implementation of the International AIDA Network Castleman’s disease registry”.

New AIDA Network Study on Macular Edema in Uveitis
A new article has been published in Frontiers in Medicine, titled: “Predictors of uveitic macular edema and functional prognostic outcomes: real-life data from…

The International Autoinflammatory Awareness Month
August is the International Autoinflammatory Awareness Month, an annual campaign launched since 2015 by the Autoinflammatory Alliance.

An Important Milestone: The AIDA Still’s Disease Registry Surpasses 700 Patients
International collaboration continues to drive real-life clinical research for deeper understanding and increasingly personalized care.

AIDA Network reaches 300 associated clinical centers in 50 countries worldwide
The AIDA Network celebrates a significant new milestone: the association of the 300th clinical center from around the world.

New Publication: AIDA Network Data on Tocilizumab in Pediatric Non-Infectious Uveitis
We are pleased to announce the publication of a new scientific article based on data from the AIDA Network Uveitis Registry and AIDA Network Scleritis…

Adalimumab Proves Effective in Children with Uveitis: New AIDA Network Study Published
A new article has been published in Frontiers in Pharmacology, titled "Adalimumab Monotherapy or Combination Therapy With Methotrexate in Paediatric Uveitis:…

New AIDA Network Study Identifies Risk Factors for Kidney Complications in FMF
A new article has been published in Frontiers in Medicine, titled "Predictors of Proteinuria, Amyloidosis and Kidney Failure in Familial Mediterranean Fever:…

A Further Milestone Achieved: The AIDA Still’s Disease Registry Surpasses 600-Patient Mark
Global collaboration paves the way to solid real-life clinical research for advanced understanding and personalized care.

Efficacy and Safety of Conventional Disease-Modifying Antirheumatic Drugs in VEXAS Syndrome: Real-World Data from the International AIDA Network
A new study from the AIDA Network VEXAS Registry explores the use of conventional DMARDs in VEXAS syndrome.

Pioneering Study on Biotechnological Agents and JAK Inhibitors in VEXAS Syndrome Published
A groundbreaking new study has just been published in Frontiers in Pharmacology, shedding light on the efficacy and safety of biotechnological agents and Janus…

New Article Published: Launch of the AIDA Network International Spondyloarthritis Registry
We are pleased to announce the publication of the article "Development and implementation of the international AIDA network spondylarthritis registry,"…

New Study on Lung Involvement in Still’s Disease from the AIDA Network
We are pleased to announce the publication of a new multicenter observational study based on data from the AIDA Network Still’s Disease Registry, focusing on…

Introducing the international AIDA Network Castleman disease registry
The new registry for Castleman disease is essential to systematically collect patient data, enabling researchers and clinicians to better understand this rare…

The Role of Gender in Behçet's Disease: Insights from the International AIDA Registry
A large-scale study investigates how gender impacts the clinical manifestations and organ damage in Behçet’s Disease

New update on the AIDA numbers and top contributors
The AIDA registries keep growing fast: patient number 4800 has been enrolled today, in the Spondyloarthritis Registry

Myocarditis in Still’s Disease: Findings from the AIDA Network Registry
A new article highlight findings from the AIDA network registry, focusing on cardiac involvement in Still's disease, particularly myocarditis

The recordings of the first three dates of the AIDA International Seminars are now online
The video recordings of the first group of three meetings, which took place on 11 and 24 April and 15 May 2024, are now available in the Academy channel.

Impact of HLA-B51 on Uveitis and Retinal Vasculitis: Data from the AIDA International Network Registries on Ocular Inflammatory Disorders
The clinical relevance of HLA-B51 in relation to Behçet’s disease-related uveitis and non-infectious uveitis not associated with BD.

The Systemic Score May Identify Life-Threatening Evolution in Still Disease
Using data from the GIRRCS AOSD-Study Group and the AIDA Network Still Disease Registry, a new study explores the clinical usefulness of the systemic score in…

Risk for cancer development in familial Mediterranean fever and associated predisposing factors
An ambidirectional cohort study from the international AIDA Network registries explores the relationship between inflammation and cancer development, focusing…

Ocular Manifestations in Juvenile Behçet's Disease: A Registry-Based Analysis
A recent study sheds light on the ocular manifestations of Behçet's disease in pediatric patients, filling a critical gap in understanding this relatively…

Introducing the new international AIDA Registry for Spondyloarthritis
The international AIDA registry for spondyloarthritis is established to collect data on axial or peripheral joint manifestations that occur in patients…

Ocular Involvement in VEXAS Syndrome: Insights from AIDA Network VEXAS Registry
An international cohort analysis explores patterns, prognostic and clinical implications of orbital/ocular inflammatory manifestations.

New update on the AIDA numbers and top contributors
The AIDA registries keep growing fast: patient number 4002 has been enrolled today, in the Uveitis Registry.

2nd Familial Mediterranean Fever Meeting, Istanbul May 3-5 2024
We would like to recommend to all AIDA participants to do not miss the 2nd Familial Mediterranean Fever Meeting, to be held in Istanbul (Turkey) from 3rd to…

Advancements in Pediatric Non-Infectious Uveitis Treatment: The Impact of TNF Inhibitors Biosimilars
Charting a Promising Course for Enhanced Efficacy and Safety in Pediatric Ocular Health

Canakinumab in Still's disease: unveiling consistent efficacy across biologic treatment sequences
A comprehensive analysis from the international AIDA Network registry highlights canakinumab's impact, irrespective of treatment line, in the management of…

A further milestone achieved: the AIDA Behçet’s disease Registry Surpasses 1000-Patient Mark
Global collaboration paves the way to solid real-life clinical research for advanced understanding and personalized care

Still’s disease across different ages: confirming the uniformity disregarding the time at disease onset
The minor differences unveiled support that Still's disease is a consistent entity throughout all stages of life.

Revolutionizing Still's disease classification: unveiling four distinct patient clusters
A multidimensional approach redefines clinical heterogeneity, paving the way for personalized clinical and treatment management

Revolutionizing Still's Disease Research: The International AIDA Network Registry Achieves 500 Patient Enrollments
A Groundbreaking Milestone Reached!

Knowledge and Current Practices in Monogenic Uveitis: An International Survey by IUSG and AIDA Network
A groundbreaking collaborative effort of the AIDA Network and the International Uveitis Study Group (IUSG) has recently led to the publication of the results…

A new study from the AIDA Network unveils MAS warning signs in Still's Disease
Macrophage activation syndrome in Still's Disease: identifying key factors for early identification and management

The dermatologic spectrum of Behçet's disease in Italy: disclosed the results of a novel study from the AIDA Network Behçet's disease registry
A novel study based on the AIDA Network Behçet's disease registry has recently been published in Internal and Emergency Medicine.

The AIDA Network achieves another milestone with the Behçet's disease registry
The AIDA Network is thrilled to announce that patient number 1000 has been successfully enrolled in Behçet's disease registry by the investigators from Marmara…

Still’s Disease and Hereditary Periodic Fever Syndromes: AIDA preceptorship
The second edition of the AIDA preceptorship "Still’s Disease and Hereditary Periodic Fever Syndromes" is approaching.

The AIDA Network joins the International Council of Ophthalmology
Empowering global vision: the AIDA Network joins forces with the International Council of Ophthalmology to enhance eye care worldwide

AIDA network reaches 200 associated clinical partners worldwide
The AIDA Network welcomes the recent association of two new clinical sites and reaches the milestone of two hundred associated partners from 42 countries…

The administration of methotrexate in patients with Still's disease, "real-life" findings from AIDA Network Still Disease Registry
A new paper on methotrexate effectiveness in Still's disease is available in Seminars in Arthritis and Rheumatism

A patient-driven registry on Behçet’s disease: the AIDA for patients pilot project
A paper describing the methodology and preliminary results of the first patient-driven registry for Italian subjects with Behçet's disease

Adalimumab effectiveness for pediatric non-infectious non-anterior uveitis
Drawing data from the Uveitis AIDA international registry, this new study provides insights on the effectiveness and safety of adalimumab for non-anterior…

Unveiling the Link: Axial Spondyloarthritis in Patients with Recurrent Fever attacks
A study provides new insights drawing data from the extensive AIDA Network for Undifferentiated Autoinflammatory Diseases (USAIDs) registry

New update on the AIDA numbers and top 5 contributors
The month of March ends with an exciting success for the AIDA Network: patient number 3000 was enrolled today in the scleritis registry.

Musculoskeletal manifestations in children with Behçet’s syndrome: data from the AIDA Network Behçet’s Syndrome Registry
The results of a novel study on juvenile Behçet's syndrome based on the AIDA Network Behçet's Syndrome Registry have been recently published in Internal and…

Efficacy of Streptococcus salivarius K12 in PFAPA syndrome: Preliminary data from the AIDA Network
Multicenter study investigating SSK12 efficacy in PFAPA syndrome: experience from the international AIDA Network PFAPA syndrome registry

ERDRI.dor registration is complete!
All the AIDA registries are now listed in the European ERDRI directory

AIDA Network - EBMT collaboration on VEXAS syndrome
We are glad to announce that the AIDA Network has recently started a scientific partnership with the European Society for Blood and Marrow Transplantation…

The agenda for the year 2023 of AIDA Academy seminars is now available
The seminars of the AIDA Network Academy continue in the new year with three cycles, each of three seminars, in the second, third and fourth quarters of 2023.

AIDA Network - IUSG collaboration on monogenic uveitis
We are glad to announce that the AIDA Network has recently started a scientific partnership with the International Uveitis Study Group (IUSG)

AIDA network reaches 170 associated clinical sites worldwide
The AIDA Network welcomes the recent association of five new clinical sites and moves closer to the goal of one hundred and seventy associated clinical sites

Canakinumab in biologic-naïve patients with Still’s disease: Real-life data from the AIDA registry
This study investigates canakinumab differences in efficacy between the systemic and chronic articular course: Real-life experience from the international AIDA…

The reference paper for the AIDA Network Monogenic Autoinflammatory Diseases registry is now online
The methodological article describing the development, framework and current structure of the AIDA Network Monogenic Autoinflammatory Diseases registry is now…

Efficacy and safety of tocilizumab in adult-onset Still's disease: a multicenter study from AIDA registry
This new study investigates the efficacy, safety, drug survival and steroid-sparing effect of tocilizumab in AOSD from a real-life perspective

AIDA network reaches 128 associated clinical sites worldwide
The AIDA Network welcomes the recent association of seven new clinical sites and moves closer to the goal of one hundred and thirty associated clinical sites.

New update on the AIDA numbers and top 5 contributors
The AIDA registries keep growing fast: patient number 2303 has been enrolled today, in the registry of Vexas syndrome.

Development and implementation of the AIDA International Registry for patients with PFAPA Syndrome
A paper on the methodology, design, and development of the AIDA International Registry for paediatric and adult patients with the Periodic Fever, Aphthous…

Development and implementation of the AIDA international registry for patients with Behçet's disease
Recently, an article focused on the design, development, and deployment of the AIDA International Registry dedicated to paediatric and adult patients affected…

Development and implementation of the AIDA international registry for patients with VEXAS Syndrome
Recently, a paper describing design, construction, and modalities of dissemination of the AIDA International Registry for patients with VEXAS syndrome, has…

Development and implementation of the AIDA international registry for patients with Schnitzler's syndrome
A paper illustrates the design, development, and implementation of the AIDA International Registry for patients with Schnitzler syndrome has recently published.

Development and Implementation of the AIDA International Registry for Patients with Still's Disease
Recently, a paper on design, construction, and modalities of dissemination of the AIDA International Registry for patients with systemic juvenile idiopathic…

Development and Implementation of the AIDA International Registry for Patients with Undifferentiated Systemic AutoInflammatory Diseases
An article about the design, development and deployment of the AIDA International Registry dedicated to paediatric and adult patient affected by…
Canakinumab as first line of biologic treatment in Still disease
Still disease is a systemic auto-inflammatory disease primarily determined by the hyper-increase and hyper-activation of IL-1β.

The role of vaccination in patients with autoinflammatory diseases in the era of SARS-CoV-2 pandemic
Vaccines represent the most effective strategy for controlling the infectious diseases and prevent severe complications, ensuring a remarkable improvement of…

AIDA for Patients is ready for launch!
A first pilot project within the AIDA for Patients action has just started, paving the way for the network's initiatives aimed at involving patients and their…

Four AIDA registries now listed in the European ERDRI directory
A crucial milestone has been achieved by the AIDA Registries action!

Development and Implementation of the AIDA International Registry for Patients with Non Infectious Uveitis
A paper on the development and deployment of the AIDA International Registry for paediatric and adult patients affected by non-infectious uveitis and other…

Development and Implementation of the AIDA International Registry for Patients with Non Infectious Scleritis
A paper on the development and implementation of the AIDA International Registry for paediatric and adult patients with immune-mediated scleritis has been…

The video recordings of the 2nd December AIDA Seminar are now online
The AIDA Seminar held on 2nd December 2021 in webinar mode with a focus on genetics of Behçet’s disease and AA amyloidosis in autoinflammatory diseases.

The video recordings of the 18th November AIDA Seminar are now online
The AIDA Seminar held on 14th November 2021 in webinar mode with a focus on Blau syndrome and axial spondyloarthritis. The recordings of the event are now…

New VEXAS registry now available to AIDA network clinicians and researchers
VEXAS syndrome (vacuoles, E1 enzyme, X-linked, autoinflammatory, somatic) is a newly discovered monogenic disease of adulthood caused by somatic mutations in…

AIDA network reaches one hundred associated clinical sites
With the recent association of two clinical centers in Taiwan and Ghana and three other Italian centers, the clinical network of the AIDA project reaches the…

New update on the AIDA numbers and top 5 contributors (2021)
The AIDA registries keep growing fast: patient number 1500 has been enrolled today, in the registry of noninfectious uveitis.

The 7th AIDA International Meeting - Day 4 video recordings are now online
The video recordings of the 4th day of the 7th AIDA International Meeting that was held on 3rd November 2021 in webinar mode are now available in the Academy…

First goal achieved by the AIDA registry for noninfectious uveitis
We are pleased to announce that also the AIDA registry for noninfectious uveitis has reached its first goal.

The AIDA Registry for Behçet's syndrome breaks the 500 records milestone
Great news from the AIDA Registry for Behçet's syndrome, which has recently exceeded 500 patients enrolled.

The video recordings of the 14th October AIDA Seminar are now online
The AIDA Seminar held on 14th October 2021 in webinar mode with a focus on ocular inflammatory diseases.

AIDA registries experience decisive increase in contributions
AIDA registries have seen a decisive increase in the number of contributions in the recent period. The increase particularly interested the Behcet, MAIDs,…

AIDA registries break the 1000 patients mark
The AIDA registries have recently surpassed the 1,000 total patient milestone. This first significant achievement was reached after just few months from the…

The video recordings of the 13th September AIDA Seminar are now online
The AIDA Seminar held on 13th September 2021 in webinar mode was focused on Pediatric Diseases and on the current use of Colchicine.

The 7th AIDA International Meeting - Day 3 video recordings are now online
The Day 3 of the 7th AIDA International Meeting was held on 1st September 2021 in webinar mode. The recordings of the event are now available in the Academy…

IL-1 inhibitors for patients with R92Q-associated autoinflammatory syndrome
An observational study of the efficacy the IL-1 inhibitors anakinra and canakinumab in patients affected by an autoinflammatory disease due to the presence of…

Biotechnological Agents in TRAPS: New Publication in Frontiers in Medicine
A retrospective study aimed at assessing the role of biotechnological agents in patients with TRAPS has been published based on “real-life” experience . This…

Drug survival of anakinra and canakinumab in monogenic autoinflammatory diseases
A recent international multicentre collaboration from the AIDA network has conducted a detailed analysis on drug survival of anakinra and canakinumab in…

Insights from the AIDA Network on juvenile-onset Behçet's syndrome
A recent collaboration between three Italian tertiary referral centers from the AIDA network (University of Bari, Florence, Siena) has allowed analyzing in…

What is an Autoinflammatory disease?
Autoinflammatory diseases are innate immune system disorders characterized by sterile inflammation, as a consequence of the deregulation of an expanding…

New data on pediatric- and adult-onset TRAPS patients from the AIDA cohort are online
A cohort of 80 AIDA patients affected by TRAPS has been recently described according to age groups (pediatric vs adult disease onset) and genotype (high vs low…

Role of Colchicine Treatment in TRAPS: Real-Life Data from the AIDA Network
It is well-known that colchicine is particularly effective in patients with familial Mediterranean fever. It is also known to be much less effective in…